Tuesday, January 26, 2010

...and he won't stop...

This boy...
He doesn't stop. Ever.
He continues to learn, grow and amaze me.
We've focused much of our attention over the past couple of months on getting Deak accustomed to using his walker. It has been fantastic; and although he tends to meander around looking at lights and making kissy faces...he has gotten pretty strong.
The only problem has been his "not yet discovered" ability of climbing into the walker himself.
The result being that the walker has worked great, but still hasn't quite provided the level of independence I knew he was craving.
A few weeks ago, on a Sunday evening, we were sitting and relaxing together in our family room. Deak was sitting and playing happily on the floor; rolling when necessary. I looked down because I had noticed he wanted a toy placed a few feet away from him and the reach of his arms. Deak then got onto all fours and crawled to it. Just. like. that.

"Blair...um...did Deak just crawl to his toy?" I asked in a sincere tone. I genuinely thought my eyes were deceiving me.
"Ya, I think so," Blair said with the same uncertainty.
That's when the games began.
Abby and I placed several of his favorite toys all around the room ...only to watch him crawl to get them. We cheered and clapped and cried. All together. We were all so proud. Deak's smile was immeasurable.
Mine may have been too.

I did not know how long this skill would take to "stick" for Deak. I was so surprised by it's appearance, that it has taken me a week or two to get over the shock that is actually happening. Mind you, I have not had a crawling child in the home for over seven years.
Seven Years.
And I have wanted, and prayed and hoped beyond belief this day would come for my Deak.
Most parents wait for six, seven, or even 12 months...
I've waited three and a half years.
Three and half years of wondering. Three and a half years of guessing which item Deak was describing with his limited vocabulary/screaming methods.
But, even more so...Deak has waited three and a half years.
Three and half years of seeing the world move around him, and wondering and hoping and praying that one day this world would become his to discover.
Can you imagine the patience this boy has? The faith it must take to understand that although his body and brain work together at a different pace...it is a pace he has accepted and will work his butt off to push through.

He is a light through which I see things clearly.
The world that I think is so hard sometimes just pales in comparison to what he must feel each day.
Just to breathe... just to move his legs.
So...all those therapists and doctors who doubted this boy would move, use both hemispheres of his brain, or progress past being "profoundly retarded."...You can shove it.

My Deak is moving forward.




(Pictures taken the first time the toy cabinet had been open and "accessible" for him. Once he realized I had opened it, he laughed out loud and crawled across the room. Only to pick the Plex Gabba toy that I knew he would want anyway...:)

18 comments:

Brianne said...

Pretty freakin' A-ma-zing!!!

Ashley C. said...

Love it!!!!!!! YAY DEAK!!!!!!!

Camille Hammond said...

OH! Robby and I are so happy! I remember one of Emily's therapists saying, "it's like she's in a slow cooker-she'll get there, it will take a little longer then others." That's Deak. We knew he could do it!

Kelli K said...

oh my here i am crying again. i'm so proud of him. i can't imagine how you must feel! i gotta come see him asap. xoxo

Kelli K said...

oh my here i am crying again. i'm so proud of him. i can't imagine how you must feel! i gotta come see him asap. xoxo

Julie Thurgood Summerhays said...

WooHOO DEAKERS!!! I can only imagine how proud he must be of himself!!!

Julie Thurgood Summerhays said...

WooHOO DEAKERS!!! I can only imagine how proud he must be of himself!!!

Alisha said...

That is amazing!! Now, I know he and Emarie need to spend more time together, since she is sooo close, all she needs is the motivation of a friend who can get what he wants, then she will want to also! Love his happy face!

Bill said...

Deak has my cheers, claps, and cries also. What an inspiration this kid is, will you write a book already!!!!

Melanie Bingham said...

Yay!!! I remember that day. I may have mentioned this before but do you or the therapist ever have him climb/crawl up the stairs in your home? I made myself do it twice a day with Rems and I swear it worked wonders for crawling and walking.

Tyler, Carrie, Bridger, and Calli said...

I am crying, That is so awesome and amazing I am so excited for Deak and you guys, what a blessing that little guy is.

Kysha said...

So great. Congrats for being patient an realizing that he'll do it when he's good and ready...whenever that is. You're a great Mom. It's so great that you recorded that moment--in the kitchen, clapping, crying--all of it. Yay, Deakon! I love his hair by the way.

Adrianne said...

Happened upon your blog again today- I read back into mid december. I laughed and cried. You are a wonderful writer- and a passionate woman! I love that. Deak is amazing- he really has come so far and will continue to do so . . .

and i think a million dollars sounds just nice!! :)

Jane said...

Yay Deak! So dang amazing! Happy for your little family.

Jess said...

Whahoooo!

auntie libby said...

you go Deak...way to rock!

Kathy and Maddi said...

I love how he knows when you put the toy far, that it is no problem. He smiles with confidence and proudness, and off he goes. Sooooo Happy!

Donna said...

What your dad said, what an inspiration this kid is. Way to go Deak!