I hope for lots of things...
I hope that tomorrow I will wake up on time.
I hope that I don't run out of soda.
I hope that Abby has a good day when she is away from me.
I hope that my kids don't get sick.
I hope that the kids I work with at school are okay.
I hope that I don't bounce any checks.
I don't take Hope for granted.
It was taken away from me before I understood that it was something that I didn't have to give up.
I know better now.
The feeling when Hope is restored is something that I cannot write with words...it is from above.
I wasn't looking forward to today; It just sounded exhausting. Deak had therapy at home this morning and then we headed to Primary's for a go-round with the Cranio-facial team. (aka 6 Doctor visits). After that, we were headed to Deak's endocrinologist for another appointment. All in all, it totaled about 9 different doctors/therapists in one day. Deak is such a trooper.
I tried my hardest to be pleasant and warm with the nurses/employees. I was hopeful that my kindness, albeit forced at times, would be returned. The second doctor we met with was one we have seen before. He has done a surgery on Deak and hasn't seen him in a year or so. We walked in the door and the doctor stated, "WOW!!!! Look at him!!!"
I smiled, and politely said, "I know."
He was astonished at the changes Deak has made in the past year and a half. He was even more impressed after viewing his medical records which showed his normal MRI and relatively clean bill of health.
"Mrs. Howe...I have full hope for him that he will continue to progress and become a well functioning adult."
He then proceeded to teach me how to talk to Deakon about his sexual endeavors as a young man (due to his genetic condition)...well meaning, and full of hope that he will grow to marry and want children.
I can't recall his words without tears.
I have hope for Deakon. It did not need to be regained...but the doctor's words fed me. They give me strength to make it through his countless therapies and appointments. They allow me to feel as if I am heading in the right direction.
They are priceless.
If you come by my house this Christmastime (Which I hope you all do), you will notice my tree is adorned with ornaments reading, Hope. Those four letters hold so much meaning in my life, and I believe in them with all my heart.
I hope for you, that you will believe in them too...
Stop by...I promise you will.
9 comments:
Yeah for Deak again!!!!!!! So when I stop by I HOPE you have some homeade something good for me to eat.
Jenny, you are an amazing writer and I will keep this short. Your entries give me hope on days when I don't think there is any such thing. Deacon gives us all HOPE!!!
Daughter Dearest, Deakon's life is the definition of hope. He has and will continue to inspire anyone that knows him. His story really needs to be told to a larger audience so that many, rather than a few can see the hope and inspiration that is Deakon. I can't wait to walk him in to the UMF auction next year, nothing better than seeing a bunch of old racers tear up.
We always had hope for Deak. And we always had a feeling things were going to be OK. Love the pictures below. Love your artwork Abby!
What an inspiration little Deakon is to everyone. We've been through that craniofacial clinic and I'm super impressed you were able to stay calm and kind to the nurses. It is a very, very long day. Good Job and Great news!!
You are clearly made of stronger stuff. I know people may have said this before and when they tell me like things it does make me a bit bonkers, but the Lord clearly could not have sent Deakon to a couple who didn't have that hope.
He rocks. Your writing rocks. Write a book so that others can share the hope that we all do. Love ya!
I agree with your dad that Deakon's story needs to be told to a larger audience to inspire that hope that is the definition of Deakon. Abby is a genius, but we already knew that. Good for you taking time away from the world and enjoying your family.
You are awesome!! Deakon is in such good hands. I have done that forced kindness thing as well--those cranio-facial visits are ridiculous. I admire you and yea for Deakon and you all.
Post a Comment