Tuesday, March 27, 2012

Milestones.

From the second a child is born, a mother instinctively believes that the beautiful goodness placed inside her arms is the most perfect being to have ever graced the earth.
It is a good thing.
That overwhelming love protects, not only the child, but the mother.   Because, really, newborns are not easy.
Almost immediately, and especially with the first-born, we compare.  We research and read and dissect the pamphlets given to us by our pediatrician. 
When should my baby hold my gaze?
Reach up their arms?
Roll over?

We feel proud when they appear to have exceeded developmental expectations, and though we may not admit it...we worry when they don't.  We search for some external validation via checklists that will fuel our most divine desire to be a good mother, and somehow tell us, "Hey. You are doing a good job at this being a mom gig."

We (mothers) count them.
The milestones.

I tried this for a little while with Deak.  When that inevitably failed, I then attempted to compare his milestones with those few who are born with the same chromosomal abnormality.  Many years and few circles of acceptance later, I've mostly stopped.  The external validation for a "job well done" does not run rampant for moms of special needs kiddos.   I had to learn to accept that milestones may become "inchstones." This is not easy; it's painful.  Excruciatingly painful.  But, eventually you get there because you need to emotionally survive.

My boy has hit a milestone.
He has patiently inched his way along his own little cautious path, and reached a place, that admittedly I was learning to accept may not be a possibility for him in this life.

Last night, he walked.
Not just a step.
He walked.
He looked so cute. 
Six years.
Six.years.of.inchstones....and now, he can walk.

He walked back and forth for an hour at therapy; making it several feet before stopping himself.  It will take him a few more inchstones before he is walking around Target.
But, he is ready.

Our last physical therapy session, three weeks ago, was pretty disheartening.  I had just found out about the new hip surgery and the implications for progress that entailed.  Deak's therapist, Mark, was respectful enough to kindly guide an appropriate discussion of realistic expectations. My heart left broken.

Last night I mentioned to Mark that he had stood in our family room and had taken two steps towards me unprompted.  I had seen this a positive sign, but was cautiously hopeful.  My heart can only take so much...

Mark and I chatted, and then, Mark just let him go...and Deak walked away from him to his toy on a nearby bench.

"What? I didn't expect that!! Let me get my video camera!!"

Mark was beaming.

I was beaming. 

And like any proud mama witnessing a milestone, I took 700 videos.
Hundreds of physical therapy sessions in my boy's little tiny life had suddenly been so worth it.
External validation had found it's way inside my analytic brain, and it felt amazing.

Mark said he'd like to attribute Deak's new found fearlessness to acquired ability level. 

"He has made significant progress in the past three weeks.  He is ready."

Those unexpected miracles.
Actual, real miracles.
I get to live them.
They are the best kind of happy I know.

A day later, I am still beaming.
And, I am now watching his 700 walking videos over and over and over again.
Crap has happened at work, and I have been able to just smile it off. I drove to grab a Subway sandwich, remembered the feeling I felt last night and cried happy tears through the drive-thru.

This boy does this; creates a depth of feeling most do not get to experience.
He is joy.
He is my joy.
My heart could not be any more full.
How grateful I am to be his mother.

4 comments:

Candice said...

That is wonderful. Please post a video!!

Jane said...

What a moment! I watched the video like 10 times and I'm not even his mama! I can't even imagine what you are feeling. Go Deak!

Julie Thurgood Summerhays said...

SO AWESOME!!!

Kysha said...

You are a true Angel Mother.