My Deak and his little Ring chromosome get kinda lonely being a one man show in our state. Sometimes there are fabulous causes that receive so much public attention due to the numbers of affected individuals, and I am obviously okay with that. But, my mama-bear heart wants to scream out loud and say, "HEY! My kid is JUST as important! Help HIM!"
Hence, the numerous posts and emails and fundraisers...my voice has no option but to be loud.
Natalie Draney with the Salt Lake Tribune wrote a fabulous article in honor of our run. I am thrilled; not just for the PR, but because I have an opportunity to share my Deak's story.
Knowledge breeds power and awareness is crucial.
See the article here.
Sign up for Deak's Run for Hope today! In less than two weeks, the registration price will increase $10.
Registration Details found here.
2 comments:
As I said on your facebook wall...Fab article, great job!!
Love the article, love Deak, we so wish for that sometimes too... to just be known!
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