Wednesday, September 24, 2008

Five Weeks.

This is a picture of Deak very intently watching "Yo Gabba Gabba."

I had to take a picture, because it is one of the few times he is actually sitting still, and I am afraid very soon I may have a little shadow following me around.

One of Deak's therapists came to our house on Monday. It had been about a month since she had seen him last. She worked with him for about 15 minutes and then turned to me and said, "What the heck happened this month?"

I smiled because I had been waiting for this response and asked, "What do you mean?"

She said, "His muscles are stronger through his shoulders and he is moving in ways he could never do before."

I finally said, "I know. He started his growth hormone treatment about a month ago."

She said, "Oh my gosh. You kept saying it would be like this, but I cannot believe the difference it has made already."

She then began mentioning different muscles and transitional movements that weren't really working for Deak a month ago. They work now. They are also getting stronger daily.

  • Deak can turn himself in a circle with his hands and legs while sitting.
  • He can go from a sitting position to crawling.
  • He can get up on all fours consistently and for long periods of time.
  • He is rocking and moving his hands forward in crawling position.
  • He only needs a reminder nudge to sit himself back up from lying on the ground.
  • He can stand and balance for long periods of time while only slightly holding onto something in front of him.
  • He is also consistently pointing to many different pictures in his book.
  • He is saying "I love you." and most recently today, "All Gone." (As he threw his FULL cup of apple juice across the room.)
Seriously - Five weeks into the treatment.

Even I am amazed at the results, but at the same time I am angry. I am angry at the doctors and insurance companies (who still have not approved his treatment). I am frustrated in a medical system that doesn't see human faces, only dollar signs. I am angry my son had to wait this long to see this happen for him.

But then I look at this little face and remember it isn't important to be angry.



He isn't angry - even if he could understand the process and what he has been waiting for, he still wouldn't be angry. He would most likely tell them he loved them, and blow them a kiss.

It becomes easier to forgive with that kind of an attitude around.



8 comments:

Julie Thurgood Summerhays said...

Yea - we are so happy for you guys and sweet Deak!!! He looks cute sitting there watching T.V - love it.

Hayley said...

simply amazing!what a sweet boy!

Natalie Winquist said...

Sounds like Deak is making huge strides! His family knew he could! Good job Deak!! We love ya!

Melanie Bingham said...

ok so I'm in tears.. Isn't it amazing what small things bring such huge joy!

Brooke said...

I am so glad that the treatment has helped so much! He is such a sweet and amazing kid! We love Deakie!

Jess said...

You are all so amazing and inspirational! We love you guys

Julie Hawk said...

Way to go Deakon! That is amazing in 5 weeks. I bet you can't wait to see what he can accomplish in the months to come. What a cute and determined little guy!

Brianne said...

He is a freakin' STUD!!!