Last year, on Christmas Eve, I spent some time mourning a loss of the life I had envisioned for my baby boy.
It was necessary in that moment to feel that way.
Retrospectively, within those moments much of the grief that was still abiding very deeply inside my heart was able to heal. Although I do not credit myself entirely with the awakening that began in that time, I am very proud of the place I've come in terms of Deak and how his journey will be here, with us.
Retrospectively, within those moments much of the grief that was still abiding very deeply inside my heart was able to heal. Although I do not credit myself entirely with the awakening that began in that time, I am very proud of the place I've come in terms of Deak and how his journey will be here, with us.
I am okay.
I am okay with where he goes and what he does.
I am okay, as long as he is happy.
More accurately, I am loving every single moment of his happy.
More accurately, I am loving every single moment of his happy.
I had a friend a few years ago, who traveled the special needs road with her own son a couple years before me. She and I were discussing our feelings on "mainstreaming" vs. specialized service classrooms. At the time I had VERY strong feelings about what Deakon's school picture needed to "look" like in order for him to be successful. She listened and said, "You know, as long as Rems is happy, I am okay with whatever."
I thought she was crazy; I didn't understand why she wouldn't want to push and push to get her son as "normalized" as possible.
Sometime earlier this year, I had a conversation with her about this discussion we had had a few years ago.
I told her that although I pretended to be nice, I thought she was nuts.
But, not now.
Now, I get it.
But, not now.
Now, I get it.
She laughed in a I knew you'd eventually get here with me kind of way.
Happy is what's important.
Not skill sets, or developmental levels, or IQ scores.
Happy.
Does that mean I will not provide every opportunity within my reach for Deakon to achieve his highest potential?
Absolutely not.
I am just okay with the journey, and the length of time he needs to get there.
I am okay, because I get this:
And this boy LOVED Christmas.
Abby is an over-achiever in all areas, excitement at Christmastime being no exception.
She FEELS the Season.
So much so, that a phone call to the pediatrician and a dose of Melatonin each night has become necessary for all of our survival.
This year was a little different for her. We did not have our own house, our decorations that she has grown up with were tightly sealed in the mad chaos of a disaster we like to call a storage unit, and she had to share the Christmas morning spotlight with a few more. On the other hand, she got to spend the most awesome night/morning of the year with her Grandparents and Maddi, and that was extra special for her.
In fact, I think Santa did a little over-compensating for this year of changes in the toy delivery department.
A few extra toys can add oodles to one's aptitude for resiliency.
Christmas Eve was spent eating dinner at Texas Roadhouse, listening to Grandpa Payne read from Luke,
opening a new Christmas book and gift from Grandma Payne,
Cookies, milk and a little something extra were left for Santa to enjoy.